Post by pilonidalstories.com on Sept 4, 2017 7:18:30 GMT
I wanted to share my story so I can come to terms with my reality, and to maybe feel better about what is happening to me, and to hundreds of other people. I first want to say that this "disease" is awful for anyone who has ever experienced it. It almost feels like it takes all normalcy of your life away. I feel humiliated in every sense of that word. I have been LIVING with this horrible monstrosity for many years now. I don't even want to recall how long...I am still in my 20's and i feel like I am 70 years old trying to dress a bed sore that will never go away. My frustration stems from not just trying to treat it on a daily basis, but having to do so even after SURGERY! My cist came back with vengeance 4 years after my surgery. I did my research, I did my homework so I could manage it, but to no avail! My surgeon removed all signs of it, including the cist "tracks". despite doing everything in my power to avoid a "flare up" it came back to haunt me. It hurts when i sit, bend down, walk, and to lay down. I haven't even been able to lay on my back to sleep for years, for fear that it will attack again and make my life as miserable as my surgery. I have other ailments to my health that keep me from a pain free life. This problem doesn't help with the quality of my life. Both my older sister, and twin sister developed this disease. Luckily my older sister had surgery and has had no signs of reoccurrence. My twin sister on the other hand is trying to manage it without surgery. For me, nothing worked. When I first went to my surgeon, I was hoping he would lance it and I would be done with this horrible pain, but when they told me I needed surgery, and that there were chances of it coming back, I lost it!! I HATE IT! I lived through my college final exams through this surgery, and I was horrified to find that it came back and is now tormenting me on a daily basis. I don't know what to do now. I fear that I will try surgery again, but I don't want to suffer through that again especially if it will come back again! I'm sure that by the time this disease is through with me...I won't even have a butt crack to sit upon! On a lighter note. This website is a great place for information. It is good to know that no one is alone in this matter...My best to all of you who are suffering with this ridiculous disease.